Home Again !!

Home Again !!
We've come full circle and made it home to Maine (not the most attractive Welcome sign we've seen in our travels)

Henniker, NH

Henniker, NH
We'll make it home after we leave here

Pretty close to home now

Now we're getting somewhere....

Niagara Falls, NY

Niagara Falls, NY
Welcome back to USA. I didn't know you could drive from Michigan directly to NY, but we did it

A 'good sign'

Wonders, The American Falls (near) and Canadian Falls (far)

Maid(s) of the Mist

Ontario, Canada

Ontario, Canada
Here we go, off to Canada again, over the Blue Water Bridge at Port Huron

Another very nice young lady intervied us and wished us safe travels

Welcome back to Canada, now to get across Ontario, then out of Canada later today

They were practicing along the highway in Canada.

Fancy Queen Elizabeth Way sign

Any and all of these all look good to us....

Locks in the Niagara River allow ships to travel and negotiate the 326 foot drop between Lake Erie and Lake Ontario. The St. Lawrence Seaway allows ships to avoid Niagara Falls along the way.

Eeny, meeny, miny, moe ???

Here we go again, kinda like SWA, just like cattle

We all got bored waiting over an hour to cross the border

I wonder if the boys will take any of our stuff this time?

Port Huron, MI

Port Huron, MI
Location, location, location...

The Blue Water (double) Bridge to Canada

This is where we stayed at Port Huron, MI, poised to cross their bridge to Canada in the morning

Harrison, MI

Harrison, MI
Didn't take alot of pictures in the rain today as we drove, but this shows the direction we took as we drove towards our reservation in Harrison, MI

St. Ignace, MI

St. Ignace, MI
Signs in St. Ignace, MI

Mackinac Bridge between St. Ignace and Mackinaw City, MI. Third longest suspension bridge in the world

Sign says it all

Crossing over the Mackinac Bridge. It connects Michigans U.P. and L.P. (mitten)

Iron Mountain, MI

Iron Mountain, MI
Could be Maine, but we're driving down Hwy 70 between Eagle River, WI and Michigan's U.P.

Shortly after leaving Eagle River, WI we entered Michigan again. We missed the welcome sign first time in, but got a second chance.

Hwy's we traveled on the U.P. of Michigan

Might be Bark River, MI but it's the same time here as it is back home, yeah !!

Lively town on the U.P.

On coming cedar post truck travelin on the U.P. of Michigan. Cedar trees and the industry thrive here

Eagle River, WI

Eagle River, WI
Nice welcome sign !!

We stayed here, and as usual opened the campground for the 2011 season

Yup, the World Snowmobile Championships are held here in Eagle River

Hwy 2 on UP of Michigan on way to Eagle River, WI. Yes, we left Wisconsin at Hurley, entered Michigans U.P. at Ironwood, took Rt 2 to Rt 45 and entered Wisconsin again at Land O'Lakes on route to Eagle River, Hi Pines Campground

Deluth, MN

Deluth, MN
Just checking to see if you're paying attention

Bridge from Deluth, MN to Superior, WI

Across the bridge from Deluth into Wisconsin

Looking down into Deluth

Landmarks at the tip of Lake Superior in Deluth, MN

Cloquet, MN

Cloquet, MN
Gas station at Fond du Lac Indian Reservation

We stayed at Big Lake Campground, Cloquet, MN, near Deluth. I liked this sign. Can't remember where it was but it was somewhere off Hwy 2

A neat General Store, northern Minnesota

Local election time in Bagely, MN

Outside of Blandin Paper Mill, Grand Rapids, MN

Theif River Falls, MN

Theif River Falls, MN
The Red River, flooding as we crossed into Minnesota at Drayton near Grand Forks. We were detoured from our route in this area due to flooded highways.

Minot, North Dakota

Minot, North Dakota
Taken from our site at Rough Rider Campground. Yes, those sites across the dirt road are under water

With the Souris River flooding here it'll be a while before anyone uses these sites

Flooded campsites at Rough Rider Campground, Minot, ND

USA, Yeah !!!

USA, Yeah !!!

Anne had to pass this huge seeding aparatus (which kindly moved over for on-coming cars)

We drove thru North Dakota on this valley-like highway on our way to Minot

USA/Canada border at North Dakota

USA/Canada border at North Dakota
Flooded farm land, like most of the farmland we saw across Canada

Suddenly a fog bank overcomes the beautiful clouds as we drive the Trans-Canada Highway

Feels good, the anticipation of leaving Canada for USA

I have serious questions about these US Customs agents, if they only knew I had this picture. They took the rest of them I had taken here, and our dog food and fruit too.

Moose Jaw, Saskatchewan

Moose Jaw, Saskatchewan
Sunrise in Moose Jaw

Trans-Canada Highway, 4000+ miles long

Anne, excited to finally see the Moose, freezing, or both

Loved this sign, seen in Moose Jaw, Saskatchewan

Medicine Hat, Alberta

Medicine Hat, Alberta
One of hundreds of the grain elevators in this part of the world

Even here in Canada, we never get too far from the train

Places along our route here

The largest Tee-Pee in the world, Medicine Hat, AL

British Columbia, Canada

British Columbia, Canada
About a half hour from Moyie Springs, ID

The border crossing was all torn up with construction going on

Look them straight in the eye and tell the truth, works every time

I would have placed the sign somewhere else.....

Put your thinkin cap on. Hey, maybe the GPS will convert for us ?

Imagine this with a nice blue sky

So near, yet so far away

You can almost reach out and touch 'em

Do I hear an echo ??

Holy Cow, let's hope not

Oh My !!

Watch out for these !!

Not too fast !!

Just plain scenic, don't blink

Yikes, no guardrail here !! C'mon now, no rubber neckin

Where the rams hang out, it's their territory

Quick, convert the meters, and hope this is over 12' 6"

This Rocky Mountain Sheep looked as tho he wanted to take us on, we slowed down

Welcome to Alberta

Moyie Springs, ID at Twin Rivers Canyon Resort

Moyie Springs, ID at Twin Rivers Canyon Resort
The road we negotiated in and out of the Resort

Looking over the edge of dirt road, half way up the hillside, as we drive out of Twin Rivers Canyon Resort

View down to the campground as we drive up the hillside (notice the road behind us in the mirror)

View of the hillside / switchbacks from the campground below

View of a train atop the canyon wall, from the lower campground

View of the canyon from the rivers edge

The train atop the canyon wall heads to the log yard we saw on the way into the Resort

Find the Pope in the Pizza, rather the UPS Truck starting up the switchbacks

The sign says it

One of many switchback turns heading down the hillside into Twin Rivers Canyon Resort

Sign on the way down to the resort

As we start driving down, a look across the canyon to a log yard on the other side

8-10 deer surprised us and traverse the steep hillside in front of us as we drive down switchbacks into the canyon

A section of the road we used to descend the canyon hillside

View from top of the hill at Moyie River Canyon, ID,. We camped down bottom at the river

We're never too far from the tracks. Taken in Bonners Ferry, ID

The Washington Desert between Moses Lake and Spokane

The Washington Desert between Moses Lake and Spokane
Desert Farming

More of the Washington Desert (no, it's not a painting)

I smell trees, yeah, we're finally out of the desert, 30 miles outside Spokane

Coming into Spokane, WA on Hwy 90

18 miles to Spokane RV Park, Deer Park, WA. Might be cold !!

Around Sunset 4/6/11

From our site at Spokane RV Resort. YEAH IT SCARED US TOO

Over the Cascade Mountains we go

Over the Cascade Mountains we go
Let's go for it

We don't carry chains, so........

WARNING !! WARNING !!

Is THIS where they filmed Rambo?

Find the Pope in the pizza (or the cell tower in the spruce trees)

Just a little further, then it's all downhill from there

Ears popping yet ??

Why not just pour salt on the wound !!

Heavy wet sleet

I see the potential for an avalanche

On to Moses Lake, WA

On to Moses Lake, WA
Another good place for a wind farm

Vantage Bridge, Vantage, WA, crossing the Columbia River

On to Black Diamond, WA

On to Black Diamond, WA
Tacoma Narrows Bridge

Gig Harbor, WA

Gig Harbor, WA
I'm thinkin' Camp Granada.....

Hood Canal Bridge

Some serious cloud cover

Sequim, WA (pronounced Sqwim)

Sequim, WA (pronounced Sqwim)
Quinnault Indian Reservation Natural Area at Olympic National Forest

We got fuel here in Amanda Park,WA

A spot on the WA coast in Quinault Indian Resesrvation today

A sign

You can see the managed forests

We've come to expect 'border crossing' checkpoints in places like this

Approaching Lake Cresent

Driving along side Lake Crescent

The boom precedes the empty log truck as it approaches

Port Angeles with Olympia, Canada (Vancouver Island) across the water in the distance

Copalis Beach, WA

Copalis Beach, WA
No fear

My girls love the beach

Ahhhhhhhhhh

Oooooooooo

The girls. What about poor Beasley, stuck back in the RV?

Anne insisted

Almost sunset

What about steamers?

Puffy Q at Copalis Beach

Ride into Washington from Astoria, Oregon

Ride into Washington from Astoria, Oregon
Next Landfall, Washington's wilderness

Tankers in the mouth of the Columbia River

Near the bridge to Astoria, the distant bridge goes to Washington State

Netarts, OR

Netarts, OR
Their boat launch

???? They grow in bunches along the roadside

Bigger, and fancier tail than the ones back home

Skunk plants, not for your centerpiece we're told

Bay City, OR

Bay City, OR
Lunch at Pacific Oyster

We're talkin dump-truck loads of live oysters

I shuck, you shuck, we all shuck

I shucked these, he shucked those, I bet mines heavier

Packing the oysters for sale

Ride from Lincoln City to Tillamook, OR

Ride from Lincoln City to Tillamook, OR
Pacific Coast Highway at sea level for a change

Big country out there

The longest scenic byway we've ever seen

Didn't expect to see cranberry bogs here !

That's where the Oregon Dunes start up ahead there

More of the Oregon Dunes, and a brief shower in the background

Lincoln City, OR

Lincoln City, OR
The Siletz, a beautiful green, wild (no dams) river

Alright! They have cats here too !!!

Oh yeah, we can take 3 nights here to recharge

Site 7, Coyote-Rock RV Park

Garlic, salt & pepper, or jerk (smoked salmon that is) for the weary

It's the Siletz River, one of a few wild rivers left in Oregon

Coos Bay, OR

Coos Bay, OR
Coos Bay

Port Orford, OR

Port Orford, OR
View of the harbor, and booms on the dock

The Marina of Port Orford, OR

???? Head, just to the South of Port Orford

Hmmmm, wonder how big it is?

The ??? Head at Port Orford

Beam me up Scotty

Trinidad, CA to Port Orford, OR

Trinidad, CA to Port Orford, OR
Glad they were resting when we came thru

Drive-thru Redwood Forest, well allright !!

WOW

WOWWOW

It took awhile to get thru California

It was a short summer for us, but we'll have another summer when we get home

Love that blue sky when it shows up

What will the sky do next?

And how did it get there?

I know Montana is 'big sky' country, but ......

Trinidad, CA

Trinidad, CA
Good thing the other park had no vacancies, we'd have missed out on something nice !

Among giants !

Hold that tree up Anne (don't anybody tell her there's no top on it)!!

Damp around these parts.....these trees drink like crazy

Caspar Beach to Trinad, CA

Caspar Beach to Trinad, CA
Oh my, no rubber neckin for the driver

Is that a sunny spot ahead, can we make it?

Up we go again

We've seen these in the news but this is a bit too close for comfort

Tryin to capture the height of those redwood trees

Holy cow, how many 'S' turns will that be

A place to pull over

In case they didn't look tall in the other picture



All that and blue sky too

WHOA !!!!

No, those are not Matchbox cars....

The Sea Ranch, CA

The Sea Ranch, CA
Before we walked down the stairway


No problem, walking down to the beach

Hope I can get back up

Meme couldn't jump the stream from the waterfall

Caspar Beach to The Sea Ranch, CA

Caspar Beach to The Sea Ranch, CA
First turn out of Caspar Beach

Along California 1

Pacific Coast Highway

PCH

Don't be looking down !!

Somewhere along California 1

Caspar, CA

Caspar, CA
My girls, Anne and Dixie discovering Caspar Beach

Caspar Beach

Yup, we've made it to the Pacific Coast

Caspar Beach from the street


Entrance, Caspar Beach RV Park

Flowers at Caspar Beach RV Park

Flowers at Caspar Beach

More of CBRV Park

Flowers at Caspar Beach RV Park

More of CBRV Park

Flowers at Caspar Beach

Willits, CA

Willits, CA
At Willits we exited Hwy 101 and took Route 20 over to the coast

Anne driving thru vineyards on Hwy 101 near Ukiah, CA on the way to Mendocino

View on the way to Mendocino

Napa Valley, CA

Napa Valley, CA
A site along the road near my cousins home

Amazing how these grape vines are trained

Standing alongside a vineyard at Napa Valley

Amazing detail of how each grapevine is tended to at Napa Valley

Tiburon, CA

Tiburon, CA
View of Angel Island and the GG Bridge from Tiburon waterfront

View of San Francisco from the Tiburon waterfront

View of San Francisco from up on a hill in Tiburon

View from a 'ritzy' hillside in Tiburon

Another cool view of the GG bridge from another hill top in Tiburon

Sacremento, CA

Sacremento, CA
Getting into Sacto

Driving thru mountains east of Napa

Even folks with solar powered gate openers have trash cans

A Winery

Tight road in the hills of Napa


Riding to Sacto thru the woods of Napa

Riding thru the hills of Napa to Sacramento

Hills and vineyards of Napa

San Francisco Bay Area

San Francisco Bay Area


Wind Farm East of Oakland

Kingsburg, CA, Viking RV Park

Kingsburg, CA, Viking RV Park
Citrus, Palms, and Snow all in one

A proud employer in this town

fruit trees and mountains way up at Sequoia

Spring sprang !

One of many colors of poppies around here

Pretty in pink

Magnolia

Flowers bloom in March, grapevines produce in September

Why not, a self directed RV Park ? Just follow the dots.

Hey Lizzy

Gardens at Viking RV Park

Driving, Lake Elsinore to Kingsburg, CA

Driving, Lake Elsinore to Kingsburg, CA
East LA Freeway

Hills and Freeway near Santa Clarita

Near Pyramid Lake

Pyramid Lake

I think Isaac Newton warned us about this stuff.

Weeeeee!!!

Some kind'a nut trees

Around Lake Elsinore, CA

Around Lake Elsinore, CA
Riverside Drive

Sunrise

Clouds cling to the mountain tops

Fiesta Island Dog Park, Mission Bay, San Diego

Fiesta Island Dog Park, Mission Bay, San Diego

More of the Dog Park

Fiesta Island Dog Park, San Diego

Mission Bay Shoreline

Territory east of San Diego

Territory east of San Diego


Funny how a Mexican looking dude usually let's us proceed thru

The stats

Carrizo Gorge, CA

Carrizo Gorge, CA
Hwy 8

Are those bumps in the road ahead, snowy ones ?

No Where's Ville

No Where's Ville
Glamis Dunes

Here we come !

A mountain pass going into Yuma, AZ

Wellton, AZ

Wellton, AZ
Fantistic crops grow in the desert, one being onions, and these were thriving

Wellton, AZ

Wellton, AZ
We never get too far from the railroad

Here we are !! Is that a little dust devil?

Gila Bend, AZ

Gila Bend, AZ
The other windy city

Desert driving

Desert driving
Near Gila (Hela) Bend

The Desert

The Desert
If you water it, green will come

Driving Thru the Desert again

Driving Thru the Desert again
On the way from Mesa to Yuma

Mesa

Mesa
Every spot, even our's, has it's tree

Mesa

Mesa
Got Citrus?

Mesa Regal RV Resort (RV City)

Mesa Regal RV Resort (RV City)
2500 spaces at this park, WOW

Mesa, AZ

Mesa, AZ
Bird of Paradise plant

Picacho, AZ

Picacho, AZ
Sunset on the ranch in Picacho, AZ

More sunset in Picacho

The spread at Picacho

Ouch Cactus

Close up ??? Cactus

Little cactus garden

Prickly Pear

View thru window from our table at Frankie's

Tucson

Tucson
Just passin thru

Deming, NM

Deming, NM
Sunset sky, Hi-Lo RV Park

?? Cactus, Hi-Lo

Sunset at Hi-Lo RV Park, Deming

Cactus Garden at Hi-Lo

El Paso Texas

El Paso Texas

Drive to Deming, NM from Carlsbad, NM

Drive to Deming, NM from Carlsbad, NM
Texas Hwy 285

Texas Tea

More Texas Route 17

On the way from Study Butte TX to Carlsbad, NM

Most motor homers are satisfied with a car in tow, but this is rediculous

Big Bend National Park, Texas

Big Bend National Park, Texas
THIS is The Rio Grande w/Mexico just across

The scenery never quit in the park and outside too

Study Butte, Texas

Study Butte, Texas
Sunrise out our door in Study Butte, fuzzy pic but you get the idea

Coming into Study Butte, TX just outside Big Bend National Park

Texas 'Hill Country' West of Austin

Texas 'Hill Country' West of Austin
Heading West from Austin to Fort Stockton

Austin, TX, Live Music capital of the World

Alongside Highway 45, Huntsville, TX

Alongside Highway 45, Huntsville, TX
__________

Dallas Day Trip

Dallas Day Trip
SuperBowl Players superimposed on a giant building

One day after the SuperBowl

The 'High Five'

Huntsville, Texas

Huntsville, Texas
It wasn't featured on 'The Travel Channel' for it's looks....

Louisianna

Louisianna
Natchitoches, LA, home of 'Steel Magnolias' the movie

Louisianna COLD

Brrrrr

Are ya sure you want to sneak up on me with that camera?

Beasley is doing fine ! Getting over a sneeze he's had for a week now

Home for the next 2 nights

View from our truck, we pull into Country Livin' RV Park

Mississippi's Natchez Trace Parkway

Mississippi's Natchez Trace Parkway

Seen 5 miles,,, you've seen em' all.

Mexico Beach, FL

Mexico Beach, FL
Dixie will be able to stretch her legs here

Florida's Panhandle

Florida's Panhandle
Route 98, a divided highway, ideal conditions for haulin'

12

12
Stress free

11

11
Pondering our next move, the drive across Texas maybe?

10

10
Florida's Natural Gas Pipeline Project along Highway19

9

9
Finally, a place for a pocket full of tangled line

8

8
The end of our road, and we're here all alone

7

7
Self explanatory

6

6
No complaints from anybody

5

5
View back from the pier/deck

4

4
No hurricanes in the forecast, RIGHT?

3

3
OK, I guess somebody's got to take Site #25

2

2
From the RV steps, sight of where 'The Old Pavilion' once stood

1

1
People just get uglier and loose their sense of time when the tide goes out

Keaton Beach, FL, Old Pavilion RV Park

Keaton Beach, FL, Old Pavilion RV Park
6pm 'ish

New Smyrna Beach, Florida

New Smyrna Beach, Florida

Aripeka, FL

Aripeka, FL
This sleepy town was Babe Ruth's favorite fishing/vacation spot

Wednesday, January 11, 2012

Weds, 5pm

Not alot of progress this afternoon.  As far at this morning, those that worked with Anne said she did great (OT, PT), and that she was alert, but she has been junky ever since I arrived at noonish.  Eyes half open, zoning in and out, completely zonked out of it.

She's pee'd a couple of times but her legs and feet are still swollen.

I'm discourged because I thought things were going to take a turn for the better today.  So, I called for a review of her scheduled meds with the Nurse Manager.  She met with me right away, and the Dr. has approved changes. 

You see, just before we left Maine Med, like last Thursday night, Anne's pain med was changed, by the Palliative Care person, to a long acting (12 hr) oxycotton twice a day, rather than a short acting oxycodone as needed.  I'm thinking that this is catching up with her.  This afternoon she's hardly been able to speak, stay awake, or hold a bottle of water.  It bothered me so much I asked that they put the pain meds back the way they were.  So, she should be clearer tomorrow, and hopefully be able to ask for pain meds when she has pain, and ask for nausea meds when she has nausea.

Regarding the Care Coordinator (Edette Flaker) at Maine Medical, she has abandoned us, and will not return phone calls.  Same for the Palliative Care team I wrote about end of last week.  Edette said they would stay by our side, supporting us after we move, and follow us, rather they never materialized at all, not in any way, and only a point person (Katherine Addicott) ever showed up and only to appease me in a time of duress, till I agreed to let them ship Anne to a rehab facility away from MMC.  I'm done with them.  I don't know how they can sleep at night (in bed with the insurance companies maybe) but I wish them the best of luck.  They basically just bumped Anne's meds, and sent her on her way.    

Tuesday, January 10, 2012

Tuesday, 7pm

Hi Friends,

Today folks came out of the woodwork.  I had come here with Anne's coat and hat in hand, ready to move her.  I was sure she was in the wrong place, definatelhy not getting the care she needed.  It's too bad we arrived here on a weekend when the place was obviously shorthanded.  The first impression had alot to be desired.

Anyway, long story short, alot of good care came today.  Anne was up on her feet several times, and was given OT and PT while sitting.  The unsafe  recliner was removed today, and the best electronic recliner chair in the place appeared in the corner of Anne's tiny room this afternoon.  She's loving it.

Laurie spent alot of time in here today and I know her Meme loved that.  It is part of the reason we had so much success today.

Nursing managers and shift supervisors showed up to speak with me.  Speech therapists and respiratory therapists, along with dieticians came to see what they could do for Anne.  Heck, we even met the house Dr. Steinbreecher around 5pm (after I had gone looking for her), missing-in-action since we got here Saturday.  I liked her.

It's as if someone had set off an 'all points bulletin' around here, if you  know what I mean.  Something definately hit the fan.  All for the good.

With a little encouragement, the Dr. increased Anne's diaretic med so that she gets one 20mg lasix in the morning, and one at night.  She is encouraged to drink water throughout the day so as not to get dehydrated.  As a result of those things, she has pee'd several times today, and my hope is that the fluid in her body is being moved to where it needs to go, to her vascular system from her extremeties.  I look forward to seeing good results with this in the coming days.  Anne took some steps around the room today too. 

We had so many people coming here to help today that lunch never happened for Anne.  It got cold and she pushed it aside.  I went out and got her something else, and she never ate that either.

Tonight Anne had dinner delivered including chicken and mixed vegs.  Lo Mein on the side.  Apple crisp followed.  As usual, she only had maybe 5 bytes of the meal and covered it up, but she did a fine job on the desert finishing almost all of it.  It looked pretty sweet, and was covered in whipped cream, but miracles do happen, and she's been sleeping like a baby for the past 20 minutes now.  Oh yeah, she also polished off most of a glass of cranberry juice.

I think she feels quite accomplished to have done all the therapy today, to have been on her feet several times, and to have taken a small number of steps.  I am able to get her in and out of her chair or bed by myself now, she no longer needs two CNA's to help.

Progress is being made.  Feels alot better than yesterday.  Anne still sleeps, no pain on her face.  Maybe she'll be up for getting dressed tomorrow.  She'd be happy to do that.

Monday, January 9, 2012

1pm, Monday

Around lunch time I encouraged Anne to move.  I wanted her up sitting on the edge of the bed.  She did it, and sat there for maybe 45 minutes.  I think that is huge progress.  While I sat with her Chief Grovo and Tashia appeared from the town offices, here to visit her.  They stayed 15 or 20 minutes and Anne really enjoyed herself during that time. 

Then lunch was delivered and she got right to it, didn't need help.  She had some water, cranberry juice, chicken lomein, and orange sherbert.  She only had a bit of lomein and covered it.  Then she finished the cranberry juice and the sherbert.  She didn't have pain for some time, but when she said she wanted to get back in bed, and did that with help from the CNA, then the pain and nausea started. 

She hit the call button, then told the CNA she had pain and nausea.  Another CNA came a few minutes later and anounced that the nurse was at lunch and would be back in about 15 minutes.  She would leave a note right on the nurses station for her to come in.  I'm sure it's been 15 minutes now, and no sign of any meds.  Not sure it matters at this point, because Anne is fast asleep and in dreamland now with her mouth open.  Looks like a pretty good sleep.

Opps, the nurse just busted in and woke her up.  Anne asked her for pain and nauesea meds.  Her BP is 107 over 81.  Now she'll fall asleep again, then get woken again to take the meds.  Some time shortly after that the PT and OT people should be in here.

11am Monday

Mornin all,

Sorry for leaving you hanging yesterday.  I took the day off from writing to the blog.  I was here with Anne for 10 hours, watched multiple football games while she slept for the most part, but there wasn't anything much to write about. 

It's Monday and I came in before 10:30 in case Anne wanted to order lunch from the alternate menu.  She did.  We ordered the Chicken Lo Mein.  Ten-thirty is the lunch deadline, and 4pm is the supper deadline.  If Anne doesn't want what's coming automatically from the regular menu, she can order from either the American or Asian alternate menus.

Yesterday (Sunday) was quiet in here for the most part.  No PT or OT person showed up yesterday, or anyone else out of the ordinary.  We have not met the Doctor yet.  The name is Dr. Steinbrecher.  Danny and Darlene, Anne's brother and sister-in-law came in to visit and Anne was happy for that. 

Today Bobby and Deanna, brother and sister-in-law were here visiting when I got in at 10:15.  Anne was glad to see them, and she's been fast asleep ever since they left around 10:25. 

It's concerning to me how tired Anne is, and continues to be.  I've been told to have patience with this.  I don't want her to lay idle too long tho.  She moves between recliner and bed and it's alot of work for her to do that.  Some times she's too tired and not interested in moving.  This concerns me too, for the risk of bed sores and pneumonia from sitting idle.  I'll do my best to get her up, and sometimes into a wheelchair to give her a ride.  She hasn't been able to walk yet, and has been so tired she hasn't left this small room since we got here mid-afternoon Saturday.

The staff was clearly shorthanded here on the weekend, so I'm hopeful things will go better with the nursing aspect now that Monday is here.  Also, I have high expectations for the PT program here.  Yesterday we were told someone would be here this morning sayin "You're in the Army now".  But, no such thing has happened.  I hope they get some work in with Anne this afternoon. 

At this point, we're in a new place, and I'll remain positive, because I know that means alot to Anne and how she feels.

Not alot of news.  Thanks for being there, reading and keeping up with Anne and her progress.   

Saturday, January 7, 2012

Moving Day, now 7pm

Hi friends,

Anne was sitting up when I got in at 10am.  Shortly after 12:30pm she was transported via ambulance to Springbrook Rehab, on Spring Street.

She didn't have any lunch today.  She requested nausea meds around 11am. 

Her feet have become swollen again since yesterday for some reason.  There is still alot of fluid in her legs.  We talked with the PT person and told her that was a major challenge, and an obstacle in her ability to get on her feet.  We have her feet up now.

Anne was evaluated by PT, OT, and RT (respiratory) folks here at Springbrook this afternoon.  Then she was very tired, but none worse for the wear following the transportation and interviews.  She's done amazingly well.

We like the PT person we met very much.  Lynne won't be working tomorrow or Monday, but somebody else will.  She gave Anne some excercises to do for her legs.  Anne is motivated to do these and get on her feet again.

Tonight the nurse served both of us dinner in this room.  We had chile, bisquit, cukes, and mandarin oranges.  Anne was clearly dissapointed when I said I didn't want to have dinner, so I caved and had dinner with her.  Glad I did, it was great.  Anne ate her chille, oranges, part of her bisquit and tried the cukes.  I cringed at the thought, but no frown on her face yet, and she's been fast asleep here next to me for almost an hour now.  Knock on wood. 

Prayers were answered today when she travelled well, moved well, and ate well.  Tomorrow she may be in street clothes.  She has alot of work to do and we hope they get right to it.  That's what she's here for, but we must keep in mind what she went thru this past 6 weeks.  Yesterday the palliative care person impressed on me just how ill she was last week, and that she was lucky to survive the staff infection.  She reminded me about the toll it takes on ones body.

Today I complained about the small room Anne is in here, sharing it with another woman named Beth, but Anne said "We'll make it work".  I concurred.  One day she might complain about something.  Maybe when she gets home she'll find something.  I can't wait.

Please pray for Anne to respond to the PT, and to gain strength.

She hasn't needed any meds since we left MMC.  Knock once more !!

Friday, January 6, 2012

Encouragement, finally, noonish

Hi everyone,

Yesterday was a terrible day, 'talking heads' all over the place, all day long, with Anne hurting in her chair.  But enough of that now.  Let's move on.

Anne spent the night in the recliner.  Her choice. 

Today I was so happy to walk in to a smile, and to see her toes wiggling, her feet slimmed down, and her legs noticeably softer and thinner.  It's been such a long time coming.  Looks like the night in the recliner paid off, big time.

She feels good, relatively speaking, but says her abdomen pain is a 5, and she took 2 oxycodone shortly after I got here.  I brought her McDonalds small Mango Pineapple Smoothy, one of her favorites, and she has taken half of it.  No pain on her face now as she sleeps.  She doesn't know it but she is awaiting Physical Therapy who will wake her and work her soon.  The nurse said it's good for her to take pain meds before working with PT.

You don't know the relief I felt today to see her slim feet and legs this morning.  I can't tell you how grateful I felt.  It's been cause for alot of discouragement for some time now, for both of us.

There was a team of folks in to see Anne (before I got here) today (snooze you loose).  Anne said they were called palliative (sp??) care specialists.  Anne tells me they spoke to her about managing cancer pain.  I'm thinking she was well enough to tell them how she's doing, but she actually said her room was full of these folks, and being that she has a huge room she had her hands full.  I'm sorry I missed it, but Anne asked them to come back to explain things to me.  The Care Coordinator had arranged for these folks to come in after I spoke with her and the doctors yesterday afternoon.  I hope they'll seek me out today so I can get their perspective.

According to Anne they still want her to be moved to a skilled rehab place soon.  I'm thinking she'll be able to start that soon.   

I was told insurance companies have alot to do with what hospital you're in, and what care you get, etc..  For example, the blood infection is gone so they want her out of here. 

Another example is how she'd like to go to New England Rehab on Brighton Ave.  We know the place.  She's been there before following her brain surgery, and, that's where she 'volunteers' with Dixie, our therapy dog, to visit patients on Fridays in the summer.  They know her there.  However,,,, there's a requirement that you must be able to do 3 1/2 hours of rehab every day, else you're not eligible.  She cannot do that at this time.  So, we have been told to pick from a list of other places, places we know nothing about.

Well, that's a quick update for this Friday.  I'll write more later.  She is better, but still in belly pain.  We'll be learning more about managing that, and I'm demanding guidance regarding her entire digestive issues.

Thanks for being there, and thanks for you're prayers.  We're encouraged today.  Anne continues to sleep soundly here next to me.

Thursday, January 5, 2012

Ugh

Hi friends,

Anne has had another day like yesterday.  I can't sugarcoat it.  The nausea is overwhelming, and now constipation has made things worse.  Belly pain persists, and her frown. 

Anne was asleep when I got in at 11:30, and she slept till after 1pm.  She woke up miserable with belly pain and nausea.  She appeared unhappy all afternoon.  We realized she was constipated mid-afternoon and began to treat that.  I wasn't aware they had discontinued her stool softerner around Monday when she was having some diahreah.

She seemed in agony between 3 and 5pm, then all of a sudden, she was able to relieve herself and by 6:30 she was able to consider the menu.  Holy Cow!  Deja Vu.  Round and Round.  Up and down. 

I ordered again tonight for her because she wasn't really ready to think about food details.  She's getting a humus wrap, chips, strawberry yogurt, lemonade, cherrios and skim milk.  I suppose I'll label alot of that, and save it in the fridge.

While I was on the phone placing her order she asked for a strawberry shake.  They offerred instant breakfast, and she said 'no thanks'.   I went to McDonalds and got the shake.  She drank about 2 inches of that, and ate 4 of the fries I tempted her with by laying them on the tray.  Shame on me.  She's eating the humus out of the wrapper now.  No pain on her face.

I wish I could explain this roller coaster ride she is on. 

Today was her last day on anti-biotics for the staff infection.  Yeah !!  She's survived that.  Consequently, they're considering moving her to a Rehab facility tomorrow, for skilled physical therapy, to get her on her feet.  I balked at the idea because she is so miserable 80 percent of the time, in pain and using pain meds occasionally, along with nausea meds constantly.  They said her liver and kidney numbers are good.

I don't understand why someone with such special and unusual digestive issues is given the 'room service' menu to order from.  If we asked someone what she had to eat yesterday the only one who'd know would be me.  They aren't tracking that in any way.

It seems Anne isn't getting some kind of care that she desperately needs.  I discussed this with the staff today, including her doctor and the care coordinator.  We'll see what tomorrow brings. 

I'd love it if Anne was able to go to a Rehab facility tomorrow, I just don't know how she can with so much sickness, and not being able to walk 5 steps without being dizzy, with exhaustion.

She is enjoying Jeopardy now.  Dozing in and out of sleep.  She sure is a  mystery.  I wish the poor kid could eat and process it.

Wednesday, January 4, 2012

Down and Up today, ending on a good note

Hi Readers,

On my arrival today Anne wasn't feeling well, and she was said to have had a poor morning.  Feeling badly continued this afternoon.  She had a bad day yesterday, and bad evening too.  Her BP has been fluctuating alot today.

PT came and worked with Anne, from the waist down, at around 3pm.  Anne moved with help from bed to the recliner.  She said she got dizzy, and that her legs were 'tight', very shaky, and that she couldn't have gone any further. 

While in the recliner the Occupational Therapist came, for the second time now, and worked with Anne's arms as she sat. 

Then, all of a sudden, Anne turned into a 'happy camper'.  It was really nice to see her face with good color, a smile, and a twinkle in her eyes. 

Around 5 Anne started to think about food, and we ordered supper.  Her nurse gave her anti-nausea med thru the IV along with the diaretic (sp?).  Hopefully Anne can eat and not suffer tonight.   Will be great if she can stay on an even keel for awhile.

Well, success, knock on wood. 

Anne picked at her chef salad with some low fat ranch dressing.  She ate a fresh fruit salad and drank a chocolate milk.  Then she tried some of her cheese stuffed baked potato.  Walah@!  No pain, and she has fallen asleep in the recliner.  I will head home on a good note.  When she wakes up she get help to go to bed.  The nurse today Celina, did a wonderful job, and put alot of thought into Anne's meds, timing of those, etc..  We'll pick her brain and try to repeat the process. 

Hoping for a good night and good morning tomorrow.

Thanks for being there, for your prayers, etc., etc.. 

Tuesday, January 3, 2012

Dr. Ebrahim returns !!

This has been an off day for Anne.  She isn't feeling well and one can see it in her face.  She's had a questioning look on her face all afternoon as she looks at (or through) the television.  She has been in a recliner chair since I arrived around noon.  Now it's 8pm. 

We were so pleased to see Dr. Ebrahim return to work today after his mystery illness.  He visited with Anne and me, casually for at least a half hour, and as usual he pulls everything together for us.  He informed us about his absense.  He had a heart attack.  He's back full time, but he doesn't have to be 'on call', therefore no weekend or night work for the next couple of months. 

He told Anne that she is on the mend and that encouraged her.  He told us to not worry about the cancer treatments for now, not until she is up to it.  He, like me, wants her to concentrate on getting on her feet.  He told us her cancer has that specific protien that he had mentioned testing for a couple months ago.  With that, her treatments, should she have them, will change to a drug named Herceptin.  It will be mixed with something else to treat the cancer, and it is less harsh than what she has taken in the past.  It is new.  That also encouraged Anne.

Tonight there's been a big turn around in how Anne has felt all day.  At 5pm she requested pain meds for her belly pain, then she asked for nausea meds.  She got ativan for that and oxycodone for the pain.  Then she began to come around, talk, and smile some.  She was miserable all day, not talking much, and not eating at lunchtime.

She was up for talking about food, so I went thru the menu with her and she asked for egg salad in a wrap.  She wanted to pick at a chef salad so it was ordered.  She got some skim milk and I convinced her to try the apple pie.  She ate very well, some of each, and now she is fast asleep.  She enjoyed it, so it's a pleasant surprise that she isn't suffering now.  Yeah!! 

Jeopardy just ended, so I'll pack up and go home in a few minutes.  When she wakes up she'll get help getting back into bed.

It was a down and up day, ending on a positive note.

Sluggish today, Noonish

Hi Friends,

Yesterday I seem to have taken a day off from blogging.  I missed it.  It felt like I left you hanging.

For various reasons I left my laptop and shoulder bag in the car, in the parking garage all day yesterday.  I wasn't in too early because I had some help from Adam in the morning to move Dixie's kennel out to the front yard, where it now can sit in full sun on good days.  Anne's son Luke beat me in here yesterday.  I took him to lunch and then he left town for home in NY.

Anne is very slow to recover.  It is concerning.  She's clearly not happy when she's tired, and she's tired alot.  She's at her best after she's been able to sleep soundly.  I'm not encouraging any visits outside of family, and brief ones at that.  I've been here for an hour now and she has been nodding out the whole time.  I will sit quietly.  Bobby and Deanna were here when I got here today.

PT was here for a time yesterday afternoon, encouraging Anne to move her legs in beneficial ways.  Then the dietician was with her, encouraging her to eat more protien.  Then she slept nicely and had a pretty good early evening.  She had a banana, chocolate milk, and PB+J sandwich (1/2) for supper, had some pain, then later I left at 8pm, after Jeopardy.


A MMC 'care coordinator' called me today as I was entering the parking garage, then we met.  She's thinking about Anne's next move, whether she needs PT or Rehab, etc..  Once Anne is medically squared away they'll kick her out of here, and we'll want to have a plan for that day.  The care coordinator told me she hadn't spoken to Anne's doctor yet, so I suggested that she do that before we talk again. 

I'd like to see Anne well enough to get up daily, and shortly go to the Rehab hospital (if she needs it) on Brighton Ave.  Hopefully she'll be mobile by then.  It might be wishful thinking, I hope not.  I would not say she's improving in leaps and bounds, and she isn't very cheery today because she's tired.  As I may have said before, she says she wants to go home, but her hips, legs, and feet are still swollen, and she's not up and around in any way yet.  If I can keep her chin up, and keep her focused on 'today', then I think she'll get better.  To think too far ahead now would definately overwhelm her. 

It seems that just having to listen and converse with others is a heavy load for her at this pointin time.  She continues to sleep.  All good.

Sunday, January 1, 2012

Late New Years Day, 5pm

Anne has done serious sleeping most of today. 

Last time she spoke to me she was concerned about her legs, with all the fluid in them, and that she can't do anything with them.  I bolster them with pillows, or move them around for her when she asks me to.  I told her what Dr. Evans said, that it would be a couple weeks for them to come back to normal.  I sensed some dissappoined in her, just a little.

I do my best to encourage her, and let her know she'd be like new soon.  It's a slow process for sure.  I'd be dissappointed too.

For lunch she ordered a banana, strawberry yogurt, lemonade, and vanilla ice cream.  She hasn't eaten any yet.  She's so tired, but she is coming around.   

Happy New Year, Noonish

Hi everyone,

(Aside - With year 2012 here, you might loose visibility to the end-of-year 2011 posts.  If so, just click the dates on the right hand side of the screen near the latest post, just below the pictures.)


I'm sitting next to Anne as she sleeps.  According to nurse Tai Anne had a good night.  I know she enjoyed seeing her son Luke who appeared out of no where yesterday.  A good thing...  Tai said Anne spent the morning in the recliner, and when I got here around 11 today she pushed the button and told the nurse she wanted to get back into bed.

Yesterday after having an uneventful lunch her supper bothered her tummy.  Just two bytes of caesar salad w/ a crouton, and one bite of baked mac and cheese.  That's all it took.  She had made a salad at home a couple weeks ago, and it worked for her, so I thought it might be worth a try.  She didn't ask for meds this time tho, she got thru it.  Tai said she had a couple bytes of breakfast today, and it was OK.  Then she struggled with a big potassium pill tho, and she vommitted.  He said he didn't think it was the food that bothered her, rather the pill and I agree.  She has a tough time with smaller pills anymore, nevermind the large ones.   

This eating game is just something Anne will have to live with I'm afraid.  She'll make choices.  She'll either make a science of it, track the good and the bad, and pay attention, or she'll eat what she wants, enjoy the moment, and pay the price.  'It is what it is', as they say.  I don't want to say much, cause I wouldn't want to walk a mile in her shoes.  Once in awhile you just want something.  She'll try, but when she wants something she can have it.

It's Patriot game time.  Anne and I usually set up and watch it together, but she could give a care about it today.  I'm happy to have the volume set to zero, and let her sleep.

Saturday, December 31, 2011

Nice quiet Saturday, Noonish, New Years Eve

Hi there friends,

Last evening Anne took 2 Ativan for nausea around 7pm, and that was a good time for me to head home.  I knew it would put her near dreamland. 

Around noon yesterday I had given away my ticket to the Celtics opening game last night, so I went home and watched it on TV.  Funny how things work out since they don't have comcast sports net/boston on the TV here in the hospital.

I didn't worry last night, and when I called this morning the nurse said Anne had a great nite of rest, and she was sleeping.  She had spent time in a recliner with help before I got here.  I got in at 11:30 today (feels like a day off)  and she was back in bed.  Her brother Bobby was here.  He's been sneaking in for quick visits lately.

The nurse, Ty, asked Anne if she was hungry and she said yes.  It's the first time she's wanted to hear the words 'food' or 'drink' for 7 days.  Ty read the lunch menu to her, first entrees, then vegs, then drinks.  Anne very slowly answered each time with her preferences.   She had a small amount of broccoli, and baked potato.  I don't think she liked the gravy on the pot roast.  She lit up when I broke out a small piece of the edge of a coffee roll I picked up for her at DD this mornin.  She ate that too, drank her small lemonade, and said 'that's enough'.

I totally figured that since she actually enjoyed the food, that her stomach would make her 'pay the price'.  I'm wrong so far (knock on wood).  She is snoring right now, sleeping good.  She was in and out before lunch, but in dreamland now.  If she tolerates that food I'd classify it as a miracle.

Dr. Evans came in and is happy with what he sees.  He said the swelling in her legs and feet will take at least a couple of weeks to go away.  He said they cancelled the CT-Scan yesterday, 1.) because her test results have improved so much, and 2.) because they're no longer highly concerned about the clot.  He said they fully expect the drugs to clear that up.  I thought it was a dreadful sounding thing, and he calmed me down.

I want you all to know that our prayers are being answered.  Thank you so much for those.  There's hardly anthing else anyone can do, therefore  nothing as important.  Thanks again everybody, and a Safe and Happy New Year to you.

Friday, December 30, 2011

Roller Coaster, 11:30am

Hi All,

Once we got settled in Gibson yesterday afternoon things went downhill.  I'm thinking it will be best going forward that only one person can be in with Anne at any one time.  Conversation itself seems to exhaust her.  There were 3 of us here yesterday afternoon, and evening, and she was glad to see folks, but she was 'junk' last night to the point we were afraid to leave her for the night.  She has not been able to push the red button on her own, a worry when it comes to leaving her.

Later, once she was able to shut down the lights and have quiet, she went right to sleep and did so like a baby, and she snorred away to dreamland.  She did so for 2 hours between 9 and 11pm, was stable, and then I felt comfortable going home. 

This morning they informed me that Anne wanted me to get in here to sign a consent form.  Anne hasn't been doing that.   Just to sick.  It was for a CT Scan that they said she was strong enough to have done.  Well, I got here and they had cancelled it.  Saying that her labs etc. have been improving so much that they don't want to do the CT Scan after all.  Not sure I get that, where her belly is still bothering her so much. 

Anne is in a recliner now, and her legs are up with 4 pillows holding them there.  She said it makes her legs feel good.  Her legs are bursting at the seams with fluid, and actually weeping drops last night.  They will soon start some diarhetics to treat that, being careful not to dehydrate her again.

Her kidney labs are back to nornal.  Her liver labs are still elevated, but coming down.  She still has the clot, but they have taken her off of the Heparin drip and changed it to a twice a day shot in the belly of something else, which is a positive sign according to her nurse today who I like very much.  I know the Heparin shot to the belly always hurt her, but this one did not. 

The only IV drip left is the antibiotic which fights the staff infection.  Her white blood count is down to 8.6 today, which is a normal range.  She has fought this down from over 19 this week.  I said yesterday that she had that infection licked, but not quite I guess.

She has basically had her eyes half open all this week with the sickness.  It is troubling.  She only makes brief comments on occasion.  One can see her drifting in and out.  However, when the nurse came in to share the results of the labs, Anne's eyes opened wide and I was so happy to see that.  It didn't last long, but what a relief......

When I got here this morning we had a solemn talk about how she is, and what she is thinking about.  It was an honest talk, and she was glad to have that with me.

Dr. Evans told me he feels she'll recover from the hellacious month she has had, and that time is and rest are of utmost importance at this stage of the game.  She is still in and out of it.

Her brother Bobby visited briefly this morning, but Anne doesn't remember seeing him.  Erika is here for a day from Connecticut, got here yesterday, and Anne didn't remember it this morning.

We pray for Anne to feel better and turn the corner.