Day 40, Monday, 03:50pm

Ready for this ?!

This morning I woke up first and let Dixie out and in before 6am. Anne was still sleeping, and I layed down and fell back asleep. All of these things were out of the ordinary.

Next thing I knew it was 7am and I woke up to Anne yelling for me from the living room. I found her on the floor. She hadn't fallen. She was feeling so sick her balance was bad, and she had just sprawled herself out on the floor. She was calling for her bucket. Eventually we made it to the bathroom and we weren't going any farther. We couldn't get her dressed, and there was nothing I could do to make her feel better.

I called the MCCM hot line to get advice and update the on-call doctor (Dr. Aronson). He advised that I call 911 and have the rescue take Anne the Maine Med Emergency room. He would update Dr. Ebrahim, and said Dr. Ebrahim would see Anne in Emergency by 8:30am.

I got in there around 10am and Anne had better color in her face, although she looked like she had been put 'through the ringer'. She was being hydrated. Dr. Ebrahim had seen Anne and told her he was admitting her to a room, so we'll be headed back upstairs to the 5th floor to the Gibson Pavillion to get better for awhile, what ever it takes.

I went to the Caf at noonish for a sandwich, and when I returned Anne was gone from Emergency. She had been taken to her room in the Gibson Pavillion, on the other side of the 5th floor from where we were last time. She is feeling much better now, with real good color in her face. It's a nice day outside, and she has a very nice view from her window. She can look right down into Hadlock Field and everything to the west of Portland. We can see the awesome and snow covered Mt. Washington in the distance today, and the heli-port is right outside the window. I guess that would be exciting if that is used while we're here, but no doubt unfortunate for someone else.

Anne orders a half ham sandwich, a fruit smoothie, soy milk, and apple pie from room service. She obviously feels alot better, and I think this was looking good in her minds eye, however she only finishes 1/4 the sandwich, 1/2 the smoothie, one piece of apple from the pie, and all the soy milk. I'm worry about that soy milk because if you remember, it had disastrous affects last time we were here.

Now, at 4pm, a wave of nausea strikes, and Anne is given a new nausea med in thru the IV. I have to say, this medi-port, even with the pain it was to install, has turned out to be a Godsend after all considering all the IV sticks it has taken the place of. This new med for nausea was prescribed today because I think they like to have 3 types available. This way they can rotate them on a schedule throughout the day, and overlap coverage. Anne recently told the Dr she doesn't want any more of the Compazine, so that was discontinued, and replaced with Phenagen, which was used just now at 4pm for the first time. So, now she has Zorfran, Atavan, and Phenagen.

It's 5pm and Anne is having a hard time keeping her eyes open. The nausea is better now. Let's hope she will rest comfortably for awhile. She had a rough night last night, and a poor day today as you can imagine.

As far as we know, we are done with the C/T now, and we have about 7 more R/T's scheduled. Let's hope Anne can easily cope with those, and that she is able to start those again very soon. She missed R/T Friday and today as you know. I look forward to seeing Dr. Ebrahim tomorrow. I missed him this morning because he beat me in here.

We thank you all for being there to read, and for your continued thoughts and prayers. You are much appreciated, and your prayers help !! Thank you.

Day 39, Sunday

Pretty much the same as Saturday morning. Anne doesn't feel well in the morning, and we head into Maine Med early for our appointment. At 10:20 she is taking hydration. She sleeps the whole time and never gets up to pee, which is a first. Anyway, we head home around noonish, and Anne feels like having a sandwich. We pick up her favorite, and she grabs a pastry too. It's obvious that she is feeling good for the moment. As it turned out, Anne was only able to eat 1/4 of her sandwich, and none of the goodie. It is still on the counter.

I went to Emma's 6th birthday party around 3pm, and stayed till 4:30. Anne wasn't able to go because of the number of runny noses that Adam said would be there. Anne slept most of the time I was gone.

It was a quiet Sunday evening and Anne didn't feel like eating anything at all. When we went to bed she asked for a few saltines for her bedside. It has been an up and down weekend, with Anne feeling ok only following the hydrations. Aside from that, she's been feeling lousy, and not wanting to eat. She has however been determined to get thru this chemo treatment. She is battling, and we are almost done with it, and the chemo pump will be removed at 10am in the morning.

Day 38, Saturday

Anne slept off and on overnight, got up several times, and is feeling very poorly this morning, so poorly that we leave early for our 10:30am hydration appointment at the Maine Med Gibson Pavilion. By 10:15 Anne is being hydrated. This makes her feel so much better, and I asked if Anne can be hydrated twice a day, i.e. again later this afternoon. The nurse stated that this should not be necessary, and they questioned the insurance coverage for same. I was just curious.

We picked up a script on the way home, and got home around 3:30pm. Anne slept off and on for the rest of the evening and had little to nothing to eat, she just doesn't feel like eating.