Not alot of progress this afternoon. As far at this morning, those that worked with Anne said she did great (OT, PT), and that she was alert, but she has been junky ever since I arrived at noonish. Eyes half open, zoning in and out, completely zonked out of it.
She's pee'd a couple of times but her legs and feet are still swollen.
I'm discourged because I thought things were going to take a turn for the better today. So, I called for a review of her scheduled meds with the Nurse Manager. She met with me right away, and the Dr. has approved changes.
You see, just before we left Maine Med, like last Thursday night, Anne's pain med was changed, by the Palliative Care person, to a long acting (12 hr) oxycotton twice a day, rather than a short acting oxycodone as needed. I'm thinking that this is catching up with her. This afternoon she's hardly been able to speak, stay awake, or hold a bottle of water. It bothered me so much I asked that they put the pain meds back the way they were. So, she should be clearer tomorrow, and hopefully be able to ask for pain meds when she has pain, and ask for nausea meds when she has nausea.
Regarding the Care Coordinator (Edette Flaker) at Maine Medical, she has abandoned us, and will not return phone calls. Same for the Palliative Care team I wrote about end of last week. Edette said they would stay by our side, supporting us after we move, and follow us, rather they never materialized at all, not in any way, and only a point person (Katherine Addicott) ever showed up and only to appease me in a time of duress, till I agreed to let them ship Anne to a rehab facility away from MMC. I'm done with them. I don't know how they can sleep at night (in bed with the insurance companies maybe) but I wish them the best of luck. They basically just bumped Anne's meds, and sent her on her way.
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