Hi friends,
Anne has had another day like yesterday. I can't sugarcoat it. The nausea is overwhelming, and now constipation has made things worse. Belly pain persists, and her frown.
Anne was asleep when I got in at 11:30, and she slept till after 1pm. She woke up miserable with belly pain and nausea. She appeared unhappy all afternoon. We realized she was constipated mid-afternoon and began to treat that. I wasn't aware they had discontinued her stool softerner around Monday when she was having some diahreah.
She seemed in agony between 3 and 5pm, then all of a sudden, she was able to relieve herself and by 6:30 she was able to consider the menu. Holy Cow! Deja Vu. Round and Round. Up and down.
I ordered again tonight for her because she wasn't really ready to think about food details. She's getting a humus wrap, chips, strawberry yogurt, lemonade, cherrios and skim milk. I suppose I'll label alot of that, and save it in the fridge.
While I was on the phone placing her order she asked for a strawberry shake. They offerred instant breakfast, and she said 'no thanks'. I went to McDonalds and got the shake. She drank about 2 inches of that, and ate 4 of the fries I tempted her with by laying them on the tray. Shame on me. She's eating the humus out of the wrapper now. No pain on her face.
I wish I could explain this roller coaster ride she is on.
Today was her last day on anti-biotics for the staff infection. Yeah !! She's survived that. Consequently, they're considering moving her to a Rehab facility tomorrow, for skilled physical therapy, to get her on her feet. I balked at the idea because she is so miserable 80 percent of the time, in pain and using pain meds occasionally, along with nausea meds constantly. They said her liver and kidney numbers are good.
I don't understand why someone with such special and unusual digestive issues is given the 'room service' menu to order from. If we asked someone what she had to eat yesterday the only one who'd know would be me. They aren't tracking that in any way.
It seems Anne isn't getting some kind of care that she desperately needs. I discussed this with the staff today, including her doctor and the care coordinator. We'll see what tomorrow brings.
I'd love it if Anne was able to go to a Rehab facility tomorrow, I just don't know how she can with so much sickness, and not being able to walk 5 steps without being dizzy, with exhaustion.
She is enjoying Jeopardy now. Dozing in and out of sleep. She sure is a mystery. I wish the poor kid could eat and process it.
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