Hi all friends and readers,
At the moment Anne is relaxed and watching afternoon TV. She had a few lousy days this weekend, Fri, Sat, Sun, just not feeling well. Not hardly any smiles at all. It was a very long weekend and I noticed that I didn't update the blog all during that time. Sorry for that, but well, there wasn't much good to say.
Dr. Duggan was on call here this weekend, and when they couldn't help Anne get rid of the nausea on Saturday he introduced a new drug, at least new for Anne, Decadron (dexamethasone). I'm wondering if this had anything to do with the lousy weekend? Just making a note of it here.
Anne continued to lose fluid weight, almost every day, to the tune of 27 pounds total so far. There was a day she lost nothing, and another day she gained a pound. Last Tuesday we determined that she'd been carrying 54 pounds of fluid weight. With that, I guess she is halfway home.
The IV lasix is still being used, and actually is being increased this evening. It is given morning and night. The nurse was wrong last Friday when she said she thought they'd change back over to Lasix pills and be sending Anne home in the next couple days. Anne says that Dr. Ebrahim said today that she could be here another 10 days. I hope to catch the Dr. visit tomorrow, but it's tough to be here daily, well into the evenings with Anne, and then get in here early enough to catch the Dr. when he's in here early. Besides, there's no schedule, so I need to be lucky too. We never know when the Dr. might pop in.
Anne went thru a sad period this morning, what with all the belly pain and nausea she experienced all weekend long. It got to her and she became pretty discouraged. She was having some tough thoughts and I was so glad it came out while I was here with her. We cried. She's pretty tired of all the drugs and care needed, and when the belly pain sticks around too long well she gets worried and scared.
This afternoon though, when she became eligible for 2 more oxycodone pain pills around 2pm, her smile came back, her eyes opened wide again, and her face relaxed. I hadn't seen that relaxed look since last week. It was a relief. So we hopped into the wheelchair for the second time since yesterday, and we took a spin around the place. She saw tons of people around the hallway who she was glad to see, and she socialized as we walked. So many people have such nice things to say about Anne, they just love her around here. They are like me in that when Anne is down, they are down, and when Anne is up, they are up. There's alot of love between Anne and her caregivers.
I'm asking you all to pray for Anne's well being, that she has more good times than bad going forward, that she makes good choices at meal time and can tolerate those meals, and that we can find the perfect mix of meds to make Anne as comfortable, alert, and pain free as we can, more often than not.